My Alopecia Experience
My first bald spot made its debut during my 25th birthday party right behind my ear. It was round and smooth and the size of a dime. It garnered a lot of attention at the party stealing my spotlight and creating cause for concern amongst my family and friends. It was something we had never seen before and the fact that the bald spot was perfectly round and as smooth as a baby’s bottom, made it obvious that it was not typical hair damage or breakage. I assumed that my hair dresser cut me too close since I always wore my hair in a short precision cut tapered at the neck. It was the only thing I could come up with but I knew there had to be something more.
The days following I lived in front of my mirror painfully watching Mr. Spot growing in size every morning when I awoke. I made an appointment to see my doctor and was diagnosed with the autoimmune disease, Alopecia Areata. There was no medical cure, and no real answers to the question, “why” and “when will it grow back”? I immediately learned the meaning of the term; the practice of medicine. As my hair loss quickly progressed, I also learned that God is the one and only true healer and the definition of healing is broad. He can heal your body but more importantly for me, was the healing of my heart and my mind. Living as a bald woman now for the past 6 years, I can say that my attitude about the origin of beauty has changed. I now know and love myself from the inside out and I understand my worth, with or without hair. I can see the beauty in me again with brand new eyes, with the understanding that it originates from my spirit within.
During this ten year experience of living with Alopecia Areata, I have developed the rarest form which is called Alopecia Universalis. In addition to that, I have Central Centrifugal Cicatricial Alopeica which is also known as scarring alopecia and is considered permanent. I may have lost all of the hair on my body but in return, I gained purpose, clarity, strength, courage and wisdom. I uncovered a passion for sharing that wisdom with others who are challenged with low self esteem due to hair loss like I was or otherwise. Today I use my talents to help others by performing as a motivational speaker and songstress. For additional information visit: www.SandraDubose.com
You can learn more about my personal journey to self love and acceptance by watching my self produced documentary on DVD entitled, “Project Liberation- My Alopecia Experience.” I created this film to educate others and bring public awareness and sensitivity to those living with Alopecia Areata. It is a source of inspiration and encouragement to many.
Following my desire to educate and inspire others, I am now the Founder and President of, The Alopecia Community of the Triangle. I am honored to work with such a loving, supportive and growing community of empowered people. Together we promote Alopecia awareness in our community and provide a safe haven for sharing and growing for anyone impacted by any form of medically related hair loss. We hold up the light for all the world to see that true beauty can never be compromised. We have discovered that it comes from the inside and shines on the outside with hair and without.